I have been in treatment for misdiagnosed Late Stage Disseminated Lyme Neuroborreliosis and Coinfections since 2012. Through my own experience with this debilitating disease, my goal is to bring as much awareness as possible to this misdiagnosed global epidemic, while helping end Lyme disease through better testing, awareness, prevention and physician training. I believe through the combined power of Crowdfunding and the professional fitness networking community working together, we can have fun and achieve this goal!
Too many people are becoming debilitated from Lyme disease, some are dying and many are being financially devastated. Training Physicians in the appropriate diagnosis and treatment is the key to ending the Lyme disease epidemic. No organization can make this happen alone, which is why we are asking you to join our Lift for Lyme crowdfunding campaign, and ask your friends and family to donate. With you we can end this epidemic and change the lives of people suffering needlessly.
WHY IS THIS IMPORTANT?
It is unclear how many cases of tick-borne diseases are properly diagnosed or reported each year. Estimates indicate that only one out of every ten cases of Lyme disease is reported and that many people are misdiagnosed and undertreated. The CDC states the following: “Most cases of Lyme disease can be treated successfully with a few weeks of antibiotics.” This is the information that is being disseminated to physicians worldwide and it strongly influences physician treatment decisions. This misinformation is putting people at risk of developing chronic Lyme disease, creating untold suffering and making it much more difficult to cure. Education and awareness among doctors and patients, coupled with heightened attention to the appropriate diagnosis and treatment of tick-borne diseases is absolutely essential.
Lift for Lyme is a crowdsourcing fundraiser and has selected the International Lyme and Associated Disease Society (ILADS) to receive all the proceeds of the workout (WOD) campaign directly. Your online donations to ILADS will go directly to their non-profit foundation, International Lyme and Associated Diseases Educational Fund (ILADEF). ILADEF is a registered 501(c)(3) non-profit organization. Your contribution is tax deductible to the full extent allowed by law. ILADS is recognized as the worldwide leader in Lyme education and training for medical professionals. ILADS promotes understanding of Lyme and associated diseases through research, education and policy. It strongly supports physicians, scientists, researchers and other healthcare professionals dedicated to advancing the standard of care for Lyme and associated diseases.
William Ernest Henley, 1849 – 1903
Out of the night that covers me,
Black as the Pit from pole to pole,
I thank whatever gods may be
For my unconquerable soul.
In the fell clutch of circumstance
I have not winced nor cried aloud.
Under the bludgeonings of chance
My head is bloody, but unbowed.
Beyond this place of wrath and tears
Looms but the Horror of the shade,
And yet the menace of the years
Finds, and shall find, me unafraid.
It matters not how strait the gate,
How charged with punishments the scroll,
I am the master of my fate:
I am the captain of my soul.